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Lupita - The first choice

After letting us know that Pita had suffered permanent problems, doctors from the NICU before and those of the NPI then gave us a very general indications of what could be our child. They said it was impossible to establish a precise diagnosis even then, that in time we would have .. or rather they would know more. Our Neuropsychiatrist suggested we wait for it to pass the first year of life before to stamp any kind of therapy.
In the meantime we began to throw across your network fossennata of information, searching, hoping to understand what to expect. So we happened on the site of an association of Verona, where a psychiatrist, tries in every possible way to pass the message that early detection in CP is essential and that, above all, it is critical to intervene immediately with rehabilitation.
so we went to Verona and at the age of two and a half months Pita begins rehabilitation.
I still remember this puppy of less than three pounds more than a child who looked like a piece of marble as was his hypertonicity.
Clearly the first to inform you of our decision was the psychiatrist who told us not to overdo it does not stress a child so small. And he was kind enough to suggest that in Montichiari at the hospital was a training ground to childhood and then maybe we could try them instead of going to Verona.
So we decided "to the shortest path "and since then Lupita is followed in Montichiari, with many small and excellent results.

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The story of Lupita

One morning in May, we were in 2006, I discovered she is pregnant ... I could not believe, in short, Fabio and I had just suggested to try that was already in a Baby!
Of course we were happy even if a little frightened, in short our lives as children were concluedento to make room for those parents.
Of course we did not expect the series of "surprises" that we already had the pregnancy.
eighth week I learned that expecting twins, a case of twins rare as monochorionic and monoamniotica, so having to make weekly checks because high-risk pregnancy.
Twins? and most at risk! Despite everything, however we have always been calm, I've been feeling well and even went so proud of my belly that would have kept me forever.
were hospitalized at 28 weeks by caesarean section planned for 32. The doctors said that given the particular case had my little safer out of the belly. But at 32 we arrived, the very day of the completion of 31 weeks monitoring has detected a heartbeat coming down, always remember that morning, and remember with gratitude the midwife who did everything to keep me quiet until I rushed to the delivery room for an emergency Caesarean ...
and here they are ... two little little frogs immediately transferred to NICU. Fabio remembers two small little creatures in one cradle Terme and runway.
Ruby has now breathed by itself, but instead Lupita was just saved by a miracle and intubated immediately. Despite the concern of doctors and their timeliness, our little Lupita reported permanent brain damage, diagnosed with spastic quadriplegia PCI.
When we were informed, after 20 days in NICU, I did not understand anything more, I sincerely thought that by now we had done it ... and in a moment the world has changed .. all the certainties of the first to go missing in a world made entirely of questions without answers. How many tears .. As much distress and anger .. but the days went by and our kids were ready to come home at last, so, with so much strength and courage and also with so much fear, we wiped away the tears and we brought home our girls to start our lives together. There is nothing like you expect it especially if you have a disabled child, the first year we went home x only bring us to carry out checks on checks. I hardly remember it was so hectic. But slowly, slowly, everything becomes routine .. It is not easy and sometimes the discomfort is felt, the difficulties are many, but not spring moller and not ever.
One of my certainty is that there are no certainties, there is no possibility of a path "normal", but this can be Verame a positive note, because every little thing is a great gift. Our road has just begun but what I know today is that I want my little girls are both happy, each with its own strengths and weaknesses.